Thursday, April 4, 2013

Not the End


A little over a year ago, Lucy calmly paused in her play, and in a state of bewildered contemplation, looked up at me and said: “Mommy... don't worry. One day your tummy will feel better, and then you can play with me.”
These few words have played in my mind countless times this year, echoing a deep feeling of quilt for obvious reasons. The only way I would be able to console myself was with the idea of the day that I would wake up from my third surgery and would dramatically utter, “it... is... finished.” I know, it's very laughable, my pathetic mental fantasy. But I would always mentally postpone thoughts that were too difficult to deal with (like Lucy's sweet little words and her concerned green eyes heavy with burdens no two-year-old should have to bear) to this particular spot in my future, because then I thought it would all be over.
On February 12th, I underwent the third surgery. Everything went well. I underwent less anesthesia and had little pain intervention, so my body tolerated everything much better this time around. And though my theatrical fantasy didn't play out like I thought and despite waking up to world of unrelenting pain, I have never been so excited to look down and see nothing but skin and surgical tape. And really, for the first time in about 3 years, everything went right.
So here I am, it is “over,” but new phrases are repeating in my mind that I suppressed months ago like my GI doctor saying: “Laura... you need to understand something. Your life will most likely improve, but you need to understand that you will have a new sense of 'normal.'”
The truth is, I'm not “normal,” and that's a really hard thing to accept. I thought that at the end of this, I would be invincible again. But I'm not. I'm still having stomach issues as my body tries to adjust to it's new organ-remodel, and no amount of Ensure will every give me enough nutrients/energy to get through the day without fatigue. I'll never live life again without "health" being on the front of my mind (something I was brutally reminded of when a trip to the park in the exposed sun turned into a Lupus flare-up). So, for the last few weeks I have found myself wrestling with the same feelings that I have felt through many tears this difficult year, and again, asking "why." Why.... why do I STILL struggle after going through all of this? I found myself asking God: "why....? Didn't I learn my lesson? Haven't I suffered enough? Haven't Jon, Lucy and Isla all suffered enough? It's not fair. They deserve better.... they deserve a wife, a mother--- one that isn't bound by her flawed, earthly body."
But here's the thing: I am earthly, I am bound by this eroding body. We all are. I wish that I could put an enlightening capstone on the end of these last few years that would have some profound resolution, but only now, I am just realizing that my “health journey” is not over, nor ever will be... this is my life. And as far as 'struggling on this earth,' well that is life.
And I'm okay with that because I have Jesus.
God's work is never done.